Sjögren’s Tracker
Sjögren’s Syndrome Companion
Log dry-eye and dry-mouth severity, fatigue, joint pain, brain fog, eye drops, saliva substitutes, hydroxychloroquine, and labs in one place. Sjögren’s Tracker is built for people living with Sjögren’s syndrome who want a clean record of every flare, every drop, and every change between rheumatology visits.
Supports primary and secondary Sjögren’s, sicca symptoms, parotid swelling, neuropathy, Raynaud’s overlap, and the medications used to manage them.
- Daily severity log for dry eye (OSDI-style), dry mouth, fatigue, and joint pain
- Eye-drop and saliva-substitute schedule with reminders that survive a workday
- Flare tracking with triggers, duration, and how each flare resolved
- Lab log for SSA, SSB, ANA, RF, ESR, CRP, and immunoglobulins
4.7/5 from 68 reviews
Free to download. Also available on Google Play. Sjögren’s Tracker is a self-tracking tool, not a medical device, and does not diagnose, treat, or prescribe.
Inside the App
Screens for dry-eye/dry-mouth severity entry, fatigue and pain trend charts, flare timeline, eye-drop schedule, and lab log.
Your Sjögren’s Syndrome Care Plan
Sjögren’s Tracker ships with a guided care plan built around the four things people with Sjögren’s tell us matter most: sicca symptoms, fatigue, flares, and the medications and labs that hold it all together.
Track dry-eye severity twice daily with OSDI-style prompts, log every eye-drop and gel application (preservative-free counts), note environmental triggers like wind, screens, or low humidity, and watch your weekly average drift down as the right drop cadence locks in.
Log dry-mouth severity, fluid intake, sugar-free gum or lozenges, saliva substitutes, and pilocarpine or cevimeline doses. Spot the dental-risk patterns that quietly drive caries and candidiasis in Sjögren’s before your dentist does.
Daily fatigue and cognitive-load scores plot against sleep, activity, and pacing. Most users find within two weeks they can pre-empt the crash days — the difference between a recoverable Tuesday and a wiped-out week.
Schedule hydroxychloroquine, low-dose steroids if prescribed, immunosuppressants, plus drops and binders. Log flares with start date, triggers, and resolution. Capture SSA, SSB, ANA, ESR, CRP, and immunoglobulin levels alongside symptom trends.
Why Tracking Matters for Sjögren’s Syndrome
Sjögren’s symptoms shift week to week and rarely correlate cleanly with labs. Without a log, the rheumatology visit becomes a memory test. With one, it becomes a conversation about trends, triggers, and what is actually working.
Dry eye and dry mouth are not single-number diseases. Severity ebbs and flares with weather, screen time, sleep, infection, hormonal shifts, and the precision of your eye-drop and saliva-substitute cadence. A clinic visit captures one snapshot. Sjögren’s Tracker captures the cadence — letting your rheumatologist or ophthalmologist see whether the recent uptick is environment, adherence, or actual disease activity.
Fatigue is the symptom most patients rank as the worst, and the one clinicians have the least visibility into. Daily fatigue scoring, paired with sleep, activity, and pacing data, turns invisible decline into a visible trend. By month two most users can name the activities and triggers that reliably wreck the following day, and the ones they tolerate. That insight changes treatment conversations.
Flares are the other story labs miss. A two-week flare of parotid swelling, intense fatigue, and joint pain can resolve before the next blood draw and never appear in the chart. A logged flare with triggers, duration, treatments tried, and what eventually settled it is data your rheumatologist actually needs and rarely gets.
Finally, Sjögren’s overlaps with lupus, RA, and other connective-tissue disease in roughly a third of cases, and complications (lymphoma surveillance, pulmonary involvement, neuropathy) need consistent year-over-year tracking. A structured log gives you a real timeline to hand to any new specialist instead of starting from scratch.
What You Can Expect
Based on how structured self-tracking tends to work across autoimmune conditions, consistent use of Sjögren’s Tracker over 30, 60, and 90 days typically surfaces patterns like these.
Cleaner Dry-Eye Pattern
Twice-daily severity logging plus drop adherence makes the right drop schedule obvious. Most users see fewer late-day crash episodes within the first month as the cadence locks in around triggers (screens, wind, AC, evenings).
Better Dry-Mouth Management
Hydration, gum, lozenges, and saliva-substitute timing become visible. Pairing with dental check-ins typically reduces the cavity and candida risk that quietly damages teeth in untreated sicca.
Predictable Fatigue Curves
Sleep, activity, and pacing data plotted against fatigue scores reveal the activities that reliably wreck the next day. Within two to three weeks most users can pre-empt the worst crashes by adjusting pacing in advance.
Earlier Flare Detection
Logging small daily changes catches a building flare three to five days earlier than memory alone. Earlier action — rest, hydration, drops, or a clinician call — usually shortens flare duration.
Higher Med and Drop Adherence
Hydroxychloroquine, pilocarpine or cevimeline, preservative-free drops at the right cadence, and saliva substitutes. Reminders plus a visible adherence percentage often raise day-to-day consistency from a guess to a reliable habit.
Portable Records for Your Rheumatologist
Export a clean PDF for your rheumatologist, ophthalmologist, dentist, or primary care doctor. Instead of recalling the last 90 days from memory, you hand them a structured timeline of symptoms, flares, medications, and labs.
Individual results vary. Sjögren’s Tracker supports self-tracking and is not a substitute for a rheumatologist, ophthalmologist, dentist, or other licensed healthcare professional. Always follow the care plan set by your clinical team.
Understanding Sjögren’s Syndrome
Sjögren’s is an autoimmune disease that attacks moisture-producing glands and can also drive systemic symptoms. Patterns of involvement vary, and tracking shape adapts to the form you have.
Primary Sjögren’s. The classic presentation: dry eye and dry mouth from immune attack on lacrimal and salivary glands, frequently with fatigue, joint pain, parotid swelling, and SSA or SSB antibody positivity. The tracking focus is daily sicca severity, eye-drop and saliva-substitute cadence, fatigue pacing, and flare logging. Lab markers (SSA, SSB, ESR, CRP, immunoglobulins) get attached to the timeline as they come in.
Secondary Sjögren’s. Sjögren’s that occurs alongside another autoimmune disease — most often lupus or rheumatoid arthritis, sometimes scleroderma or mixed connective-tissue disease. Sjögren’s Tracker lets you tag overlapping conditions so flare and medication tracking reflects the combined picture, not just the sicca symptoms.
Sicca syndrome (no antibody). Dryness and the symptom profile of Sjögren’s without positive antibodies. Workup is ongoing for many users; the tracking pattern remains the same — daily severity, drop cadence, fatigue, flares, dental visits — and the log itself is often the strongest evidence of a real, ongoing condition during that diagnostic journey.
Systemic involvement. A subset of patients develop neuropathy, vasculitis, interstitial lung involvement, renal tubular acidosis, or other systemic manifestations. Sjögren’s Tracker does not try to diagnose any of these; it lets you log relevant symptoms (numbness, breathlessness, rash, swelling) so a pattern is visible to the right specialist.
Lymphoma surveillance. People with Sjögren’s have a meaningfully elevated long-term lymphoma risk, especially with persistent parotid swelling, low complement levels, or cryoglobulinemia. Sjögren’s Tracker does not screen — but it does keep year-over-year notes on parotid changes, lymph nodes, and the labs your rheumatologist orders so the picture stays continuous between visits.
What to Track for Sjögren’s Syndrome
These are the fields that turn a Sjögren’s log from a notebook of vibes into a record your rheumatologist and ophthalmologist can actually use. Track whichever apply.
Dry-eye severity (morning and evening)
Dry-mouth severity and water intake
Daily fatigue and brain-fog scores
Joint pain, swelling, and morning stiffness
Preservative-free drops, gels, and Restasis or Xiidra
Pilocarpine or cevimeline doses and side effects
Hydroxychloroquine and other immunomodulators
SSA, SSB, ANA, RF, ESR, CRP, immunoglobulins
Dental visits, caries, and oral candida episodes
Parotid swelling and lymph-node changes
Neuropathy, Raynaud’s, rash, breathlessness
Flares (start, triggers, duration, what helped)
Tracking Tips for People Living with Sjögren’s
Practical advice from people managing Sjögren’s syndrome. None of this is medical advice; it is structural advice for your log.
Log Every Drop You Use
Preservative-free drops are easy to underuse and easy to overuse. Logging each application makes the actual cadence visible — most users find their best dry-eye weeks correlate with a steady cadence, not a heavy day-of-flare rescue pattern.
Time Pilocarpine Around Meals
Pilocarpine and cevimeline work best dosed at consistent times. Use Sjögren’s Tracker reminders to keep the cadence steady, log side effects (sweating, GI), and watch whether saliva and dry-mouth scores actually move.
Score Fatigue Before You Power Through
Rate fatigue first thing in the morning and again mid-afternoon. The pattern that emerges (good morning, afternoon crash, or all-day depleted) tells you whether pacing or sleep is the real lever.
Sip, Do Not Gulp
Hydration helps dry mouth, but huge volumes at once mostly become bathroom trips. Track sip cadence — small, frequent intake correlates with steadier sicca scores than two big glasses with meals.
Pair Logs With Dental Visits
Cavities and candidiasis are the silent damage of dry mouth. Note every dental visit, fluoride application, and any new caries. Most users find a clean dental pattern is one of the strongest signals that their sicca care plan is actually working.
Log Flares the Day They Start
Memory rewrites flare timelines fast. A two-line entry the day a flare begins — triggers, symptoms, severity — is far more useful at the next rheumatology visit than a reconstructed story two weeks later.
Photograph Lab Reports
After every blood draw, snap the report and attach it. The raw values plot on your trend, and the original PDF stays available if you switch rheumatologists or need to escalate to a sub-specialist.
Bring the Export to Every Visit
A 90-day PDF beats a memory test. Hand it to your rheumatologist and ophthalmologist at every appointment so the visits stop being “how have you been” and start being “here is the trend we should discuss.”
How It Works
Four steps from install to a record your rheumatologist can actually use.
Set Your Sjögren’s Profile
Tell Sjögren’s Tracker whether you have primary or secondary Sjögren’s, your antibody status (SSA, SSB, ANA) if known, and the medications, drops, and saliva substitutes you currently use. Sensible defaults preload if you do not have everything yet.
Log Daily Basics
Morning and evening dry-eye and dry-mouth severity, daily fatigue and pain scores, drops and saliva substitutes used, plus medications taken. Each entry takes under 15 seconds. Sjögren’s Tracker timestamps everything and updates your dashboard live.
Capture Flares and Labs
When a flare starts, open it as a flare entry: triggers, symptoms, severity, what you tried, what helped. After every blood draw, add SSA, SSB, ANA, ESR, CRP, and immunoglobulin values and attach the report PDF.
Review and Share
Before every rheumatology, ophthalmology, or dental appointment, open the summary view: severity trends, fatigue curve, flare timeline, medication adherence, and labs. Export a clean PDF for your specialist or keep it private.
Frequently Asked Questions
What people living with Sjögren’s ask before starting their log inside Sjögren’s Tracker.
Is Sjögren’s Tracker a medical device or a diagnostic tool?+
Does it support primary and secondary Sjögren’s?+
Can it track preservative-free drops, gels, and Restasis or Xiidra?+
Does it support pilocarpine, cevimeline, and hydroxychloroquine?+
Does it sync with Apple Health or Google Fit?+
Can I export my data for my rheumatologist?+
Is my health data private?+
Do I need to know my antibody status to start?+
Track your Sjögren’s. See what is actually working.
Dry eye, dry mouth, fatigue, flares, drops, and meds all interact. Log everything between rheumatology and ophthalmology visits so you can see what is changing and act before the next appointment, not after it.
Free to download. No credit card required. Sjögren’s Tracker is a self-tracking tool and is not a medical device.
Sjögren’s Tracker is a self-tracking app. It is not a medical device and is not a substitute for a rheumatologist, ophthalmologist, dentist, or other qualified healthcare professional. Content on this page is for informational purposes only and is not medical advice. Sjögren’s syndrome care decisions, including diagnosis, medication, eye drops, saliva substitutes, immunosuppressants, and dental care, should be made with your clinical team. If you experience sudden vision change, severe eye pain, persistent parotid swelling that does not resolve, unexplained weight loss, persistent fevers, breathlessness, severe neuropathy, or any urgent symptom, seek immediate medical attention.