EDS Tracker App
EDS Tracker
Track joint hypermobility, subluxations, pain flares, and fatigue patterns across all EDS subtypes. The EDS Tracker helps you document your connective tissue symptoms, monitor comorbidities, and share structured reports with your geneticist, rheumatologist, or physical therapist.
Includes tracking for Hypermobile EDS (hEDS), Classical EDS, Vascular EDS, and related hypermobility spectrum disorders.
- Identify subluxation triggers and reduce joint injury frequency
- Track comorbid conditions like POTS, MCAS, and GI dysfunction together
- Share detailed symptom reports with your medical team
Free to download. No credit card required.
Your EDS Care Plan
The EDS Tracker includes a guided care plan designed to help you manage connective tissue symptoms from day one.
Record which joints sublux, the activity that caused it, severity, and recovery time to identify your most vulnerable areas
Track pain across multiple body regions, note whether it is joint, muscle, or nerve pain, and log intensity changes throughout the day
Log your PT exercises, track adherence to your home exercise program, and monitor how strengthening work affects joint stability over time
Track POTS, MCAS, gastroparesis, and other EDS comorbidities alongside your joint symptoms to see how they interact and flare together
Inside the App
Log joint hypermobility, pain levels, subluxations, and daily function for better EDS management
Why Tracking Matters for EDS
Ehlers-Danlos Syndrome is complex and multi-systemic. Structured tracking helps you find patterns your body cannot explain on its own.
EDS affects connective tissue throughout the entire body, which means symptoms can appear in seemingly unrelated systems. A subluxation in your shoulder, brain fog the next morning, and a gastroparesis flare that evening may all share the same root cause. Without structured tracking, these connections stay invisible, and appointments with specialists become frustrating exercises in trying to recall what happened and when.
Tracking your daily symptoms, subluxation events, fatigue levels, and activity creates a timeline that reveals how your body responds to different demands. Many people with EDS discover that certain activities consistently trigger subluxations 24 to 48 hours later, or that barometric pressure changes correlate with their worst pain days. These patterns only become visible with consistent logging over weeks.
For those managing multiple EDS comorbidities, tracked data is especially valuable. Your geneticist needs different information than your cardiologist or your gastroenterologist. A comprehensive symptom log lets you generate focused reports for each specialist, showing them exactly how their piece of the puzzle connects to the larger picture of your health.
What You Can Expect
Based on evidence-informed approaches to connective tissue disorder management, consistent use of the EDS Tracker with structured tracking and guided care plans may support the following outcomes.
Systematic subluxation logging reveals which joints are most vulnerable and which activities or positions put them at risk. Over time, you build a personal map of your joint stability that guides protective strategies and helps your physical therapist target the right muscle groups for stabilization work.
By recording the context around each subluxation event, including activity, time of day, fatigue level, and weather, you identify the triggers that precede joint instability. Recognizing these patterns lets you modify activities before subluxations happen rather than reacting after the fact.
Tracking activity levels alongside subluxation and injury events helps you find your body’s safe activity threshold. Instead of the boom-and-bust cycle that many EDS patients experience, you develop a pacing strategy informed by your own data, reducing overexertion injuries and crash days.
Generate focused reports from your tracked data that give your geneticist, rheumatologist, or cardiologist a clear picture of your symptoms between visits. Instead of trying to recall weeks of events in a 15-minute appointment, you share objective trend data showing subluxation frequency, pain levels, and comorbidity interactions.
Track your home exercise program adherence alongside joint stability metrics to see which exercises are strengthening your most vulnerable joints. Your physical therapist can review your logs to adjust your program based on real progress data rather than subjective recall, making each session more targeted and effective.
Log your daily activity levels and energy expenditure alongside symptom severity to find the balance between staying active and avoiding flares. Over time, you learn your personal energy envelope and can plan activities that maintain function without triggering the payback cycle that leads to multi-day crashes.
Individual results vary. This app supports self-management and is not a substitute for a qualified healthcare professional. Always consult your doctor regarding any medical condition.
Understanding Ehlers-Danlos Syndrome
A group of connective tissue disorders that affect collagen production and structure throughout the body.
Ehlers-Danlos Syndrome (EDS) is a group of 13 heritable connective tissue disorders caused by defects in collagen production, structure, or processing. Collagen is the most abundant protein in the human body, providing structural support to skin, joints, blood vessels, and organs. When collagen is faulty, the effects ripple across virtually every body system, making EDS one of the most complex conditions to diagnose and manage.
The most common subtype, hypermobile EDS (hEDS), is characterized by joint hypermobility that exceeds normal range, measured using the Beighton score. Joints that bend too far also dislocate and sublux more easily, causing chronic pain, instability, and progressive joint damage. Classical EDS primarily affects skin elasticity and wound healing, while vascular EDS (vEDS) carries serious risks to blood vessels and organs. Each subtype has distinct features, but many symptoms overlap.
EDS rarely travels alone. Most patients manage multiple comorbid conditions, including postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), gastroparesis, chronic fatigue, and temporomandibular joint dysfunction (TMJ). This multi-system involvement means that tracking symptoms in isolation misses the bigger picture. A comprehensive tracker that captures joint events, autonomic symptoms, GI function, fatigue, and medication responses together gives both patients and their medical teams the data needed to manage this complex condition effectively.
What to Track for EDS
These are the key symptoms and metrics that help you and your care team understand your EDS patterns. Track as many as apply to your experience.
Tracking Tips for EDS
Practical advice to help you get the most out of your tracking practice.
Record subluxation events as soon as they happen, noting the joint, what you were doing, how it resolved, and how long recovery took. Waiting until the end of the day means losing critical context. Over weeks, this data reveals which activities and positions are highest risk for each joint, letting you modify your approach before injuries happen.
Many people with EDS report that weather changes, particularly drops in barometric pressure, worsen joint pain and increase subluxation frequency. Note the weather conditions alongside your symptom entries. After a few months, you will have clear data showing whether atmospheric changes genuinely affect your symptoms or whether other factors are responsible.
EDS, POTS, MCAS, and gastroparesis often flare together but are usually managed by different specialists who do not see the full picture. Log all of these symptoms in the same tracker so you can identify multi-system flare patterns. Showing your cardiologist that your POTS episodes spike on the same days as your worst subluxations gives them context they would never get from their own assessments alone.
Rate your energy on a simple scale each morning and evening, then note your activity level throughout the day. The goal is to find the threshold where you stay active without triggering a multi-day crash. Over a few weeks, you will spot the tipping point between productive activity and overexertion, allowing you to pace yourself with data instead of guesswork.
How It Works
Getting started with the EDS Tracker takes just three simple steps.
Personalize Your Tracker
Choose which EDS symptoms matter most to you, set up your medications and supplements, add your bracing schedule, and pick reminder times. The app adapts to your specific EDS subtype and comorbidities.
Log Daily and During Events
Record subluxations when they happen, log your daily pain and fatigue levels, and track your PT exercises. Add context about what triggered each event. The entire daily check-in takes about 60 seconds, and individual subluxation logs take even less.
Share with Your Medical Team
Review trend charts showing subluxation frequency, pain patterns, and comorbidity correlations. Generate focused reports for your geneticist, rheumatologist, physical therapist, or cardiologist before each appointment.
Frequently Asked Questions
Common questions about using the EDS Tracker for self-management.
Your body keeps a score. Track it.
EDS affects joints, energy, pain, and sleep in interconnected ways. Daily tracking reveals which activities protect you and which push you past your limits.
Get EDS TrackerFree to download. No credit card required.
Related Conditions
This app is not a medical device and is not a substitute for a qualified healthcare professional. Always consult your doctor for medical advice. Content is for informational purposes only.